World MS Day

For over 20 years, Merck KGaA, Darmstadt, Germany, has been working to better understand MS and deliver solutions that improve the lives of all those affected by it.

Follow #MSInsideOut on Twitter and LinkedIn to learn more and hear from those affected and our employees on how our patient initiatives are building an Inside Out understanding of MS.

To mark World MS Day 2019, we support MS International Federation (MSIF)`s campaign #MyInvisibleMS. To raise awareness on World MS Day and shine a light on the invisible symptoms of multiple sclerosis, real people with MS attended a creative workshop hosted by Merck KGaA, Darmstadt, Germany, to visualise the unseen burdens they live with day in, day out. These art pieces have been put together to form the My Invisible MS Art Gallery, which will be used to raise awareness in 15 countries across the world on World MS Day 2019 and beyond.

Below you can see images from the My Invisible MS art gallery, including background pictures and videos from the workshop.

To support MSIF and their Informed Decision Making Program, Merck KGaA, Darmstadt, Germany, is donating 1 Euro* per combined use of the hashtags #MSInsideOut and #MyInvisibleMS across social media on World MS Day and until June 8th 2019.?

About the Informed Decision Making Program: MSIF and its members work hard to provide impartial information in a variety of accessible formats, so that people know they are making the best decision for their MS and their lives. There are several pillars to this work and, it’s MSIF`s second biggest budget after research, which reflects its importance to the global MSIF movement:?

? Website?
? Newsletters?
? Publications?
? Care & support network?

*Up to 50,000 Euros

Stuart, Australia

I’ve drawn two pictures to show the variability – when I first had MS I got the symptom of pain. I had such an intense level of pain that I thought it was the most amount of pain that someone could ever have. Then MS said “hold my beer” and increased the level of pain to such an intensity that it was completely off the chart. It’s something I never thought was possible. That opened my mind to how different it is to the normal experience of pain. (Stuart is a paid consultant of Merck KGaA, Darmstadt, Germany)

Stanca, Romania

I feel like I’m dizzy sometimes, and that’s something you cannot see. And sometimes you have to grab onto things to regain balance. Also, sometimes I feel like I have brain fog. My first symptom of having MS was Optic Neuritis– where I had blurry vision. I couldn’t see straight, so I drew my eye out of my body. These are my invisible symptoms because I look just like a normal person. (Stanca is a paid consultant of Merck KGaA, Darmstadt, Germany)

Edward, Germany

This portrays how I feel when I have a relapse – I’m in a dark place with the symptoms that I’ve had so far… The tingling and sensibility disorder, with vision problems, double vision and also dizziness. When I’m good and I don’t have a relapse, I don’t even think about my MS. (Edward is a paid consultant of Merck KGaA, Darmstadt, Germany)

David, Spain

MS is an abstract illness, it’s difficult to understand how we feel. I look like I’m perfect but in fact I have fatigue, I have no sensation in my hands, fingers or the left part of my body, but nobody sees it. I need to do more than you to do the same thing because of MS. I have to be like 3 people to win MS - that’s part of my life. (David is a paid consultant of Merck KGaA, Darmstadt, Germany)

Marco, Portugal

This image represents the everyday nuances of having MS. The aura of numbness and clumsiness follows you everywhere and only a few can see it. Speechless and literally out of focus everything is harder, everything is easier to avoid. MS is an iron ball, invisible but efficient on locking you to your home, your loved ones, your safe zone. (Marco is a paid consultant of Merck KGaA, Darmstadt, Germany)

Carolyn, America

My MS art shows skin sensitivity, that’s a lot of heat on the skin and also heat from the pain within. I feel like a normal person who is falling apart under the heat of this illness. (Carolyn is a paid consultant of Merck KGaA, Darmstadt, Germany)

Martyn, Australia

My wife has MS, I do not – I am her carer. My art shows her symptoms: she suffers from pain, she suffers from numbness, sometimes her vision, she definitely suffers from fatigue. But she doesn’t let that define her – she is undefined. She is an amazing person, she has strength and she certainly is not someone who will let MS own and operate her. (Martyn is a paid consultant of Merck KGaA, Darmstadt, Germany)

Chris, Germany

My major detail is pain. I’ve got a little pain, much more pain and the strongest pain. That’s the main thing for me that is invisible. (Chris is a paid consultant of Merck KGaA, Darmstadt, Germany)

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This section of our website includes information about certain topics related to the global healthcare business of Merck KGaA, Darmstadt, Germany.? For more specific information about the company’s healthcare business in the United States and Canada, please visit our EMD Serono website.

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